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In Memory

Smsunfl Nicole

Patient Information

Age: 21

Sex: Female

Diagnosed: 12/05

Location: Ohio

Diagnosis: Stage IV DSRCT. Diagnosed with cancer in October 2005. Took until December after a second biopsy and genetic test to get final diagnosis of DSRCT. Cancer had spread to both breasts, mediastinum, pleura, multiple spots in abdomen, and had enlarged lymph node involvement.

Hospital: Akron Children's Hospital

Oncologist Steven Kuerbitz, M.D.

Caringbridge Journal

Just leaning on Jesus

Passed away: 2/26/07

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Treatment

Chemotherapy

  • First Line:
Cisplatin and Topotecan
Vinblastine (Velban) and high dose of Celebrex. This is to keep new blood vessels from going to tumors and keep them from enlarging between the high doses.
  • Second Line
Carboplatin and VP-16
Irinotecan and Temodar

Surgery

Biopsy - found small live DSRCT cells still in abdomen - PET scan failed to 'see'.

Alternative/Complementary Medicines

Artemisinin

Time Line

Date Test Treatment Chemicals Result
12/05 0 Chemotherapy 1 0 Diagnosed with DSRCT
1/06 0 Chemotherapy 2 0 0
1/20/06 0 Chemotherapy 3 0 0
2/9/06 0 Surgery - to place line 0 Harvested stem cells over 3 days
2/14/06 0 Chemotherapy 4 0 0
3/24/06 0 Chemotherapy 5 Cisplatin for 2 days, and than Topotecan Blood in urine from chemo, starting to clear up.
4/9/06 CT Chemotherapy 6 0 Tumors have shrunk. Noticed the enlarged lympth nodes.
5/06 0 Chemotherapy 7 0 0
6/28/06 Biopsy Chemotherapy 8 0 Small traces of live DSRCT found scattered in abdomen. PET scan did not pick up.
7/3/06 0 Chemotherapy Carboplatin and VP-16. 4 new drugs
8/10/06 0 Chemotherapy 1 Temodar and Irinotecan 0
8/18/06 CT 0 0 Everything is the same, except one nodule in abdomen is smaller.
8/28/06 0 Chemotherapy 2 Temodar and Irinotecan 0
9/18/06 0 Chemotherapy 3 Temodar and Irinotecan Velban treatment
10/2/06 CT Chemotherapy. Trying Artemisinin to complement chemo treatments 0 Some tumors are smaller, some a little bigger, and some the same size.
11/06 0 0 0 0
12/06 0 0 0 0
1/07 0 0 0 0
2/5/07 0 Chemotherapy 0 0
2/13/07 0 0 0 Infection. Admitted to hospital.
2/26/07 0 0 0 Passed away.

15

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