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Groups by Year Diagnosed

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Groups by Year Diagnosed

Key

  • Name, Age, Date Diagnosed, Passed Away, Location
  • = Survivors

Tinysunfl In Memory

Commentary

This list of patients only reflects people who are known (through websites, contact, or the Yahoo DSRCT group) to have had DSRCT in the past fifteen years. This is not a comprehensive list of all patients who have had the disease. Thus be cautious when looking over the following data to not draw conclusions. Remember, no one is a statistic. All patients are individuals.

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Diagnosed 2015

  • Butler, Maggie, 31, Feb 2015 Columbus, OH link
  • Fragos, Archie, 7, Feb 2015 Adelaide, Australia link
  • Reese, Walker, 18, Feb 2015 Austin, TX link
  • Cook, Zachary, 19, June 2015 Alberta, Canada link

Diagnosed 2014

  • Losoya, David, 15, July 2014 TX link
  • Bolt, Morgan, 23, Nov 2014 NY link
  • Curtis, Andrew, 6, Nov 2014 Warren, MI link
  • Rousseve, James, 39, Nov 2014 Los Angeles, CA link

Diagnosed 2013

  • Surber, Jason 42
  • Sechi, Deidre Jan-13 Kansas
  • Wasco, Madison, 10, Jul-13

Diagnosed 2012

  • Bolles, Marcus 7, Dec-12 Astoria, Oregon Video
  • Quebedeaux, Kyle Feb-12 link

Diagnosed 2011

TinysunflTerrian, Kyle, 18 Jan-11 12/2013 New Carlisle, Ohio Link

TinysunflSmith, Josh 16, Jan-11 11/3/2011 Redcar, England UK

TinysunflAlves, Ian, 15 Jun-2011 12/12 Horace, ND link

  • Smith, Michael 20,  Apr- 2011 O'Fallon, Mo.

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Diagnosed 2010

TinysunflTaylor, Xander 12, Jan-10 03/07/12 Tyler, Texas

TinysunflVillarreal, Zephaniah 14, Jan-10 Florida Link

TinysunflPantalone, Nicholas 17, Feb-10 3/2013 PA Link

TinysunflHammon, Jesse 25 Mar-10 10/2012 Rigby, Idaho Blog

TinysunflKlopper, William Apr-10 California Journal

TinysunflSteiner, Matthew 37, Apr-10 Lyman, Maine MySpace

TinysunflBlevins, Jack 26, Jun-10 1/2015 TN Link

  • Creech, Jeffrey 4, Jul-10 New York Link

TinysunflOnkle, Alex 4, Jul-10 Missouri Link

TinysunflOwens, Marc 17, Sep-10 Dublin, Ireland

TinysunflSwieczkowski, Joffrey 20, Sep-10 1/13, Frisco, Texas Link

  • Thompson, Michael 7, Nov-10, Summerville, SC Article
  • Richard, Bernard Dec-10, Geneva, Switzerland
  • Booth, Brad 38, Dec-10, Helena, Alabama Link

TinysunflCraig, Adam 23, Dec-10 3/2011 Cherokee, Iowa Article

  • McNulty, Renee 46, Tennessee

TinysunflSteele, William Frisco, Texas

TinysunflDimitris Papageorgiou 11, Sep-10 03/19/2012, Athens,Greece link

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Diagnosed 2009

TinysunflButler, Rhema 13, Jan-09, Olympia, Washington [1]

  • Reese, Shawn Jan-09

TinysunflTakamoto, Gavyn 14, Mar-09 4/1/2011 Pearl City, Hawaii

  • Nicoletti, Biagio 46, Apr-09, Italy

TinysunflAreno, Jared Apr-09 3/7/2010 LA

  • Carneiro, Pedro Couto 18, May-09, Brazil

TinysunflBrennan, Ryan Charles 16, Jul-09 Fairfield, CT Blog

TinysunflPrince, Carl 36, Jul-09 08/04/12 LaGrange, Ill.

TinysunflHauser, Ashlynn 6, Aug-09 12/11, Virginia Link

TinysunflHenry, Jonathan 22, Aug-09 New York Blog

  • Mogan, Rylie Hope 9, Aug-09 Illinois Journal
  • Davis, Mia 17, Sep-09 Jacksonville, Florida

TinysunflMossböck, Thomas 33, Oct-09 06/01/2011 Graz, Austria

TinysunflFish, Jason 31 Oct-09 5/25/11 Jacksonville,Florida Link

  • Grow, Bobby Nov-09, Vancouver, Washington Blog

TinysunflWheeler, Rory 27, 11/09 7/26/2011 Troy, MI Blog

  • McGoldrick, John 52, Nov-09, Houston, Texas
  • Moschner-Santoro, Michelle 24, Nov-09 Ohio News

TinysunflHylton, Amanda 22 Dec-09, Beckley, West Virginia My space

TinysunflPalmer, Stewart 26, Dec-09 4/11 Grimsby United Kingdom

TinysunflNagavolu, Siddhartha 23, 2009 3/2011 Bangalore, India

TinysunflMelanie, Tessieri 32, Sept 09 21/11/2009 Australia

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Diagnosed 2008

TinysunflShannon Yoder, 23 Jan-08 4/10/09 Link

TinysunflMcMurray, Scott 19 Jan-08 4/27/2011 White Plains, NY Webblog

TinysunflDennehy, Denis Feb-09 Killarney, Co. Kerry, Ireland

  • Charlie Futhey, 5 Feb-08 Rose Hill, KS Link

TinysunflShelly Ann Smith, Mar-08 Link

TinysunflJason Roy, 22, Mar-08 12/12/09 Link

  • Larry Statler, 24, Mar-08 Markham, Ill

TinysunflSteve Rettke, 24, May-08 Rochester, NY

  • Barry Apr-08

TinysunflBen, Dameian 9, Apr-08 2009 Tuba City, Arizona

TinysunflHargrove, Taylor 18, Apr-08 3/20/2011 Texas Journal

TinysunflBradley Dycus 26, May-08 11/9/10 Lawrenceville, GA Blog Journal

TinysunflJourden, Anthony 30, May-08 12/30/10 Michigan

TinysunflCory Monzingo 19, Aug-08 12/15/10 Texas Link

  • Peters, Marijke 29, Aug-08, Belgium

TinysunflRandy Clark, 35, Oct-08  2/10/09Lexington, SC Link

TinysunflWeimer, Ashley 18, Nov-08 6/2011 Indianapolis, Indiana

TinysunflDao, Ben 32, Dec-08 2011 Nev

  • Lacey, Alonzo 16, 2008 Inkster, Michigan Link

TinysunflWebberly, Elijah 13, 2008 12/22/10  Florida  Link Facebook Facebook - Sharing our memories of Elijah Webberly OB'M

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Diagnosed 2007

TinysunflStanfill, John Doug 36 Jan-07 5/12/11 Woodland, CA

TinysunflEppinette, Daniel 26 Jan-07 4/29/11 Little Rock, Arkansas Link

TinysunflBigmore, Chloe Jan-07 12/8/07 UK Link

TinysunflAustin McDonald 14, Jan-07 4/20/08 Mississippi

TinysunflRyan Hutchinson 10, Feb-07 4/29/08 Roanoke, Virginia

TinysunflRobert Holland 14, Mar-07 9/07 England

TinysunflChase Sullivan 19, Mar-07 4/15/10 Tulsa, Oklahoma Link

TinysunflReyna, Henry 21, Jun-07 7/24/08 Inglewood, California In Memory Video

TinysunflJoshua Parrish 27, Aug-07 11/1/08 Sierra Vista, Arizona

TinysunflMcDowell, Larry 51, Aug-07, 10/2012 Cambridge, Ontario, Canada

TinysunflShaw, Ryan 19, Aug-07 7/18/2011 San Antonio,TX Link Ryan200717

TinysunflMark Briscoe 27, Oct-07 1/24/09 Roseville, CA Link

TinysunflR. J. Lipsky 29, Nov-07 2/16/2010 Newton, MA Link

TinysunflSchmidt, Nick Champaign, 28, Nov-07 11/29/10 Illinois Link

TinysunflCanário , Ana Rita 35 Dec-07 9/21/08 Lisboa, Portugal Blog

  • Wilson, Scott, 29 Dec-07 Ontario, Canada

TinysunflMcElveen, Jessica 13, 2007 12/12 Tyrone, Georgia


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Diagnosed 2006

TinysunflJoshua Medlin 19, Feb-06 9/30/11 Hughesville, Maryland

TinysunflSmith, Kyle 14, Feb-06 9/19/07 Midland, Michigan

TinysunflDaniels, Stacey Micoli 23, Mar-06 7/27/09 Lockport, NY.

TinysunflNoa Joly-Messier 16, Mar-06 12/19/07 Laval, Quebec, Canada

TinysunflDavid Gilbert 21, Apr-06 1/27/08 Toronto, Ontario, Canada

TinysunflJackson Palmer 5, Apr-06 Fishers, IN

TinysunflConnor Steventon 11, May-06 Isle of Man, UK

  • Raymond Alaniz 10, Jun-06 Sanger, CA

TinysunflChristian T. Braswell 40, Jun-06 8/30/10 Lago Vista, TX

TinysunflJoshua Gruver 20, Jun-06 12/11/06 Gainesville, GA

TinysunflRobert Luciano Filoso 27, Jul-06 08/21/06 Ottawa, ON, Canada

TinysunflBright, Matthew 7, Aug-06 9/14 /08 Charlotte, NC

TinysunflKarwacki, Renee 21, Sep-06 10-21-07 Sharpsville, Pennsylvania Obit

  • Brunello, Jacob Oct-06 Mount Shasta, California

TinysunflOwens, Cole 6, Oct-06 8/2015 Mo Link

TinysunflMaggie Stahl 16, Dec-06, Tucson, AZ

  • Jones, Stacey 20, Dec-06 Columbus, Mississippi

TinysunflRay Knowles 15, Dec-06 Barrington, New Hampshire

  • Simmons, Diana 6, Dec-06 Chesterfield, Virginia Link MISSPRINCESSDIANA

TinysunflSamuel W. Marx 18, 2006 7/29/2009 Vancouver, WA

TinysunflWaller, Eugene 13, 10/29/07 Southfield, MI

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Diagnosed 2005

TinysunflMarlena Hodges 24 Jan-05 7/27/07 Lynchburg, Virginia

Tinysunfl Sheila Murray 39, Jan-05 2/1/07 Massapequa Park, N.Y.

TinysunflJordan Budimir-Hussey 21, Jan-05 03/20/06 LaSalle, Ontario, Canada

TinysunflDaniela Retana 13, Feb-05 08/24/05 Washington, D.C.

TinysunflDustin Hickie 15, Feb-05 09/10/05 Morris, Manitoba, CA

  • Luthiger, Michael 49, Feb-05 California

TinysunflMichael Wilson 14, Mar-05 07/25/05 Franklin, Tenn.

TinysunflSteven Brill 18, Mar-05 01/21/06 Florida

Tinysunfl Nathan Robertson 17, Mar-05 2/11/08 Thomaston, Maine

TinysunflPatrick McGill17 , Apr-05 9/26/07 Modesto, CA

  • Shinan 26, May-05 Z.J., China

TinysunflSteven Skurat 29, Jun-05 11/09/06 Louis, MO

  • Nalish Sharma 36, Jun-05 New Zealand

TinysunflLeroy Gutierrez 22, Jun-05 12/26/06 Portales, NM

TinysunflMiddelman, Erik 43 Jun-05 6/09 Arnhem, The Netherlands

TinysunflMichael Kiyici 11, Jun-05 1/6/08 Germany

  • Callie Rodabaugh 17, Sep-05 Lake County, FL

TinysunflMeliza Orantes 30, Sep-05 9/10/10 San Francisco, CA Journal

TinysunflVikki Lowe 22, Sep-05 2/27/07 Derry, NH

Tinysunfl Trent Ueckert 15, Sep-05, 8/9/07 Texas

TinysunflBender, Michael 27, Sep-05 9/8/08 California Blog

TinysunflPatrick Beasley, 21, Oct-05 4/11 Kansas City, Mo Link Prayers for Patrick

Tinysunfl Caleb Hobbs 30, Dec-05 Terre Haute, IN

TinysunflNicole Bodjanac 21, Dec-05 02/26/07 Norton, OH

TinysunflRyan Wippert 21 Dec-05 4/6/07 Milwaukee, WI


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Diagnosed 2004

TinysunflMark DeWalle 21, Jan-04 6/13/07 St. Louis, Mo.

TinysunflChris Oberholzer 30, Jan-04 01/29/06 Queensland, Australia

TinysunflChristopher Burrage 33, Jan-04 01/01/05 Boston, MA

TinysunflMatt Bera 34, Jan-04 08/06/05 Sacramento, California

TinysunflKeegan Ott 15, Feb-04 10/9/06 Cooperstown, N.D.

TinysunflMichael "Mikey" Friedman, 15 , Mar-04 10/5/08 New York

TinysunflRyan Vodicka 24, May-04 3/11/09 Omaha, Ne

TinysunflBrittany Stanaland 12, Jun-04 03/29/06 Bonifay, Florida

TinysunflPayne, Steven 15 Jul-04 10/15/09 Chicago, IL

TinysunflJuan Vargas 25, Jul-04 01/28/05 Houston, Texas

TinysunflZach Ramsey 22, Aug-04 Arkansas

TinysunflJason DePew 15, Oct-04 Passed Away 9/11/07 Springboro, Ohio

TinysunflFrank Quigley 57, Dec-04 11/2005 England

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Diagnosed 2003

TinysunflPhilip Childs 17, Jan-03 12/17/03 Suffolk, England

TinysunflNicola Corry 23, Feb-03 05/23/05 Bristol, England

TinysunflPatrick Scranton 40, Feb-03 05/05/05 Houston, Texas

TinysunflKamusoko, Alex Jr. Feb-03 5/18/05 Georgia Foundation

TinysunflJasmine Shield 7, Feb-03 10/11/04 Fort Worth, Texas

TinysunflDave Stanley 15, Mar-03 06/11/05 Suffolk, England

TinysunflJade Pusey 30, Apr-03 01/29/05 Riverton, Utah

TinysunflNikki Schaut 12, Apr-03 11/23/07 Oakdale, Minn.

TinysunflRebecca Cloer 25, Apr-03 6/21/08 Fort Collins, Co.

TinysunflD'Ondre' Parker 27, May-03 10/1/06 San Antonio, Texas

TinysunflCraig Jenkins 41, Jun-03 10/17/06 Park City, Utah

TinysunflNikole Liles 10, Jul-03 06/17/04 Magnolia, Texas

TinysunflRicardo F. 22 Jul-03 9/12/09 Rio de Janeiro, Brazil

TinysunflStephen Kuhn 13, Aug-03 09/06/04 Dallas, Texas

TinysunflGene Shaw, Jr. 15, Sep-03 09/03/04 California

  • Jordan Marquis 12, Oct-03 Connecticut

TinysunflDavid Zucca 40, Dec-03 7/13/06 Stratford, Ontario, Canada

TinysunflChristos Mouktaroudes 29, Dec-03 02/28/05 Limassol, Cyprus

TinysunflKen Voss 31, Dec-03 05/23/05 Naperville, Ill.

  • Mellen, Claire, 23 Dec-03 Link

TinysunflAnthony Minutoli 10, 2003 07/23/03 Australia

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Diagnosed 2002

  • Bond, Matt 29 2002 Kansas Link

TinysunflThomas Stokes 7, Jan-02 09/03 Virginia

TinysunflJay Daunoras 38, Feb-02 10/19/05 Shamong, N.J.

TinysunflAlex Fisher 27, Feb-02 08/02 London, England

TinysunflDavid Byrd 32, Mar-02 10/19/07 Haymarket, VA

TinysunflTobias H.Toshiaki 17, Apr-02 12/25/02 Singapore

TinysunflRobert Broude 17, Aug-02 12/18/04 Manchester, England

TinysunflSara Pitts Aug-02 04/03 Kansas City, Missouri

TinysunflJennifer Rogers 16, Sep-02 07/13/04 Kentucky

TinysunflDennis Drake Sep-02 08/03 Philippines

TinysunflChristopher Carfi 14, Sep-02 05/08/05 Turnersville, N.J.

TinysunflSwicegood, Shane 30, Oct-02 6/1/09 Knoxville, Tenn.

TinysunflShawn Bidleman 30, Nov-02 11/20/08 Durand, Mich.

TinysunflKeith Kozlowski 28, Nov-02 12/29/05 Baltimore, Maryland

TinysunflDr. Yu-Chieh Su 2002 12/02 Taiwan

TinysunflMalcolm Withnall 2002 02/03 Sydney, Australia

TinysunflCarl Croft 2002 '07/03 Chicago, Ill.

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Diagnosed 2001

TinysunflJ.S. Liu Feb-01 11/01 Taiwan

TinysunflMatthew Saville 17, Feb-01 02/01 Fredericksburg, Va.

TinysunflChander Nagpal 19, Feb-01 06/01 India

TinysunflLindsay 41, Mar-01 01/02 Canada

TinysunflMatthew 24, Mar-01 04/15/02 Australia

TinysunflHugo Perez Diaz 21, May-01 12/02 Puebla, Mexico

TinysunflAlex Urdaneta 22, May 01 06/01 Miami, Florida

TinysunflChad Martinson 29, Jun-01 12/25/03 Bemidji, Minn.

TinysunflThomas Pete Munoz 19, Jul-01 08/24/03 Louise, Texas

TinysunflSteve Rodman 45, Jul-01 02/03 Dallas, Texas

TinysunflIneke Schwartz 39, Sep-01 04/08/04 Netherlands

  • Greg Orgel 13 Dec-01 Toledo, Ohio

TinysunflStacey Montford 11, 2001 10/21/05 UK

TinysunflMario Pagan 7, 2001 03/20/02

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Diagnosed 2000

TinysunflCraig Brock 20, Jan-00 06/01 Cowan, Tenn.

TinysunflUnitas Lewis 33, Mar-00 05/21/02 Maplewood, N.J.

TinysunflStacey Cowley 8, Mar-00 04/00 London, England

TinysunflKyle Jones Apr-00 04/00 New Madrid, Missouri

TinysunflDan Fox 16, Apr-00 09/06/02

TinysunflBen Bittner 10, Apr-00 2001 Pennsylvania

TinysunflBrad Kirkpatrick 29, May-00 12/28/02 Salem, Mass.

TinysunflJacob Williams 12, Jun-00 06/05/03 Iowa

  • Kyle Nailor 6, Jul-00 Windsor, PA

TinysunflKerry Chellsen 23, Jul-00 05/25/03

TinysunflNia Jones Aug-00 11/00 Wales

TinysunflBrian Bishnow 25, Oct-00 02/01/04 Waco, Texas

  • Joseph (Joey) Porambo 29, May-00 7/19/01 San Jose, CA

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Diagnosed 1999

Tinysunfl Derrik Ray 5, Mar-99, 08/01 Abilene, Kansas

Tinysunfl Chris 33, Aug-99, 09/00

Tinysunfl Jeff Adomanis 16, Sep-99 10/27/01 New Jersey

Tinysunfl Gerry Webber Oct-99 8/2000 Brazil

Tinysunfl Brian Reichle 21, Oct-99 12/18/01 North Olmsted, Ohio

Tinysunfl Harrison Price 8, Oct-99 04/09/02 Imperial, Mo.

Tinysunfl James Dwyer 32, Dec-99, May-00 Albuquerque, N.M.

Tinysunfl Jordan Slater Dec-99 05/04

Tinysunfl Gerrit Baar 1999, 07/00 Germany

  • Kristen Luder 9 (Kristen Salmans), 1999 Kansas City, MO Facebook

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Diagnosed 1998

TinysunflPaul Gonzales 19, Jan-98 04/11/01 Ontario, California

TinysunflDerek Wilson, D 31, Feb-98 05/05 Pass Christian, Miss.

TinysunflChris Bruyere Apr-98 06/04/00

  • O'Reilly, Katie 19, Jul-1998 Minnesota

TinysunflKent Mc Intyre 20, Dec-98 02/02 Comox, Canada

TinysunflRusty Sweany Dec-98 05/31/01 Fort Worth, Texas

TinysunflSean Luzunaris 13, 1998 09/09/01

TinysunflRichard Berman 34, 1998 09/29/00 Medford, Oregon

TinysunflBob McCarthy 1998 1999 Philadelphia, Penn.

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Diagnosed 1997

TinysunflMichelle Thomas 28, Aug-97 12/23/98 New York, New York

TinysunflTimothy Mays 17, Aug-97 5/26/98 Cleburne, Texas

TinysunflJerry Abram 30, Sep-97 06/14/99 Bloomington, Ind.

  • Richard Spencer 24, Oct-97 England

TinysunflSarah Taylor Gibson Oct-97 07/17/00 Canada

TinysunflAndrew Ness 8, 1997, 05/02 White Lake, S.D.

  • Sheldon, Bill 1997 Galesburg, Illinois Article

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Diagnosed 1996

TinysunflBrandon Thompson 17, Jan-96 10/05/99 Minnesota

TinysunflStoker, Steven 12, Jan-96 12/1/97 Virginia

TinysunflTimothy Lunchuck 16, Jul-96 04/30/97

TinysunflHayley Hendricks 12, Dec-96 10/26/97 Nevada

TinysunflMaria Schlegel 31, 04/10/98 Zurich, Switzerland

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Diagnosed 1995

TinysunflTim Ryder 33, Feb-95 07/96 West Virginia

TinysunflGreg Kelly 20, Jun-95 08/14/98 Allentown, Penn.

TinysunflAdam Sellers 16, Jul-95 09/97

TinysunflPamela Smith 35, Nov-95 08/06/01 Olean, N.Y.

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Diagnosed 1994

TinysunflCavalon B. Givens 17, May-94 01/31/96 New Jersey

TinysunflKevin Kennedy 25, Dec-94 5/23/05 Torrance, California

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Diagnosed 1993

TinysunflDavid Denault 33, Oct-93 09/98 Cranston, Rhode Island

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Diagnosed 1992

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Diagnosed 1991

TinysunflRyan Eric Schafer 12, Feb-91 12/07/95

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See also

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