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In Memory

Smsunfl Ryan


Patient Information

Age: 10

Sex: Male

Diagnosed: 2/07

Location: Roanoke, Va

Diagnosis: DSRCT stage 4 Masses in abdomen & spread to liver

Passed away: 4/29/08

Hospital: Community Hospital Roanoke, Va 24013 now known as Carilion Roanoke Memorial Hospital [Oncologists : Dr. Joan Fisher and Dr. Mandy Meck]

Stem Cell Transplant performed at MCV Hospital in Richmond, Virginia [Stem Cell doctors : Dr. John McCarty and Dr. Howard Chung followup care: Dr. Kamar Godder]

Radiation performed at Blue Ridge Cancer Care Roanoke, Virginia [Radiation oncologist: Dr. David A. Buck, MD]

Caringbridge Journal

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Treatment

Chemotherapy (Kushner's P6)

Surgery

Primary tumor removed, attached to colon and only a tiny bit remains. Tiny areas of concern remain on liver, spot on the colon, and a small area in pelvis.

Autologous Stem Cell Transplant

Radiation 20 sessions ( 4 weeks mon- fri not on weekends for 20 min.)

Maintenance medication: Celebrex (200mg taken twice a day) and Thalomid (aka Thalidomide - 100mg taken once a day - dosage to be increased as tolerated). Decision to give this was the hope that it may prevent the tumor from growing back. The plan to is take for 6 months to a year.

Time Line

Date Test Treatment Chemicals Result
2/13/07 0 Chemotherapy (Kushner's P6) Vincristine - Doxorubicin - Cyclophospamide - Mesna 3 days inpatient Ryan felt an immediate relief and shrinking of the primary tumor
3/5/07 0 Chemotherapy Vincristine - Doxorubicin - Cyclophospamide - Mesna 3 days inpatient 0
3/19/07 Stem Cell Harvest 0 0 0
3/26/07 0 Chemotherapy Vincristine - Doxorubicin - Cyclophospamide - Mesna 3 days inpatient 0
4/11/07 CT Scan 0 0 significant shrinkage
4/16/07 0 Chemotherapy Ifosamide - Etoposide - Mesna 5 days inpatient 0
5/7/07 0 Chemotherapy Ifosamide - Etoposide - Mesna 5 days inpatient 0
5/21/07 CT Scan 0 0 more significant shrinkage - liver lesions showing shrinkage Ready to schedule surgery
6/1/07 0 Surgery 0 Removed primary tumor that was attached to colon and a tiny bit remains where it was connected. Other tiny areas of concern remain on the liver, the spot on colon, and a small area in pelvis.
6/11/07 0 Chemotherapy Vincristine - Doxorubicin - Cyclophospamide - Mesna 3 days inpatient 0
7/2/07 0 Chemotherapy Ifosamide - Etoposide - Mesna 5 days inpatient 0
7/19/07 CT Scan 0 0 Small portion left on colon after surgery is gone. Lesions on liver gone but one small piece. In the deep pelvis there is still "seeding" of disease - the amount is less but still present.
8/6/07 PET scan Chemotherapy Thiotepia 3 days inpatient PET showed a shadow on the spine - an MRI showed nothing - no sign of disease. Liver lesion gone - small portion left on colon gone. Deep pelvis "seedings" still present but shrinking.
8/10/07 0 Chemotherapy Carboplatin 3 days inpatient 0
8/15/07 0 Autologous Stem Cell Transplant 0 0
9/07 0 0 0 0
10/11/07 CT Scan 0 0 Scan showed no sign of disease
10/18/07 0 Radiation 0 Began 20 sessions of radiation
11/07 0 0 0 0
12/3/07 CT scan and bone scan 0 0 Done as a baseline - No evidence of disease - still some inflamation and fluid from radiation. Scans to be redone in January so the baseline will be a clean scan
1/08 0 0 0 0
2/11/08 CT scan 0 0 clear scans - no evidence of disease
3/7/08 0 C Celebrex (200mg twice daily)and Thalomid (aka Thalidomide - 100 mg once a day to be increased gradually to a tolerable level) Maintenance medication - taken in hopes of preventing the cancer from being able to return
4/28/08 0 0 0 Passed away




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