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Orgel

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Patient Information

Age: 13

Sex: Male

Diagnosed: Dec-01 Location: Ohio

Diagnosis: Desmoplastic small round cell tumor

No evidence of disease: 4/02

Current: In remission for DSRCT as of October 2006

Current status: No evidence of disease

Oncologist: Dr. Brian Kushner
Surgeon: Michael P. La Quaglia, FACS, FRCS
Oncologist: Dagmar Stein, MD
Stem Cell Transplant

Caringbridge Journal

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Treatment

  • High dose chemotherapy - Kushner's P6
  1. HD-VAC = Cycles 1,2,3,6 -Adriamycin (Doxorubicin);Cytoxan (Cyclophosphamide); Vincristine
Cycles 4 & 5 = Topotecan and Cytoxan
  • Surgery
  1. Debulking Surgery
  2. Surgery = 100% tumor removal
  • Full abdominal radiation
  • Stem cell transplant
  1. High dose chemo - Thiotepa and Carboplatin

Time Line

Date Test Treatment Chemicals Result
12/01 0 Courses 1 - HD-VAC 0 0
1/02 0 Courses 2 - HD-VAC 0 0
2/02 0 Courses 3 - HD-VAC 0 0
2/02 0 Debulking surgery by Dr. LaQuaglia at MSKCC. 0 0
3/02 0 Courses 4 - Topotecan and Cytoxan 0 0
4/02 0 Debulking surgery by Dr. LaQuaglia at MSKCC. Achieved 100% tumor removal. Considered tumor free since then. 0 Clinically no evidence of disease.
5/02 0 Courses 5 - Topotecan and Cytoxan 0 0
6/02 0 Courses 6 - HD-VAC 0 0
7/02 0 Stem Cell Transplant - Un. of Michigan, Ann Arbor. Pre-transplant drugs - Thiotepa and Carboplatin 0 0
8/02 0 0 0 0
9/02 0 Total Abdominal Radiation. 0 0
10/02 0 Total Abdominal Radiation. Treatment was supposed to end here but he tolerated the regimen very well and was allowed to take more chemo. 0 0
11/02 0 0 0 0
12/02 CT - clear oral VP-16 0 0
1/03 CT - clear oral VP-16 0 0
2/03 CT - clear oral VP-16 0 0
3/03 0 oral VP-16 0 0
4/03 0 oral VP-16 0 0
5/03 0 oral VP-16 0 0
6/03 0 25 mg of Vioxx nightly 0 0
7/03 CT - Clear 25 mg of Vioxx nightly 0 0
8/03 0 25 mg of Vioxx nightly 0 0
9/03 CT - Clear 25 mg of Vioxx nightly 0 0
10/03 0 25 mg of Vioxx nightly 0 0
11/03 0 25 mg of Vioxx nightly 0 0
12/03 CT - Clear 25 mg of Vioxx nightly 0 0
1/04 CT - Clear 25 mg of Vioxx nightly 0 0
2/04 0 25 mg of Vioxx nightly 0 0
3/04 CT - Clear 25 mg of Vioxx nightly 0 0
4/04 0 25 mg of Vioxx nightly 0 0
5/04 0 25 mg of Vioxx nightly 0 0
6/04 CT - Clear 25 mg of Vioxx nightly 0 0
7/04 0 25 mg of Vioxx nightly 0 0
8/04 0 25 mg of Vioxx nightly 0 0
9/04 CT - Clear 25 mg of Vioxx nightly 0 0
10/04 0 25 mg of Vioxx nightly 0 0
11/04 0 25 mg of Vioxx nightly 0 0
12/04 CT - Clear. No Tumors. 25 mg of Vioxx nightly 0 0
1/05 PET/CT Clear 25 mg of Vioxx nightly 0 0
2/05 0 25 mg of Vioxx nightly 0 0
3/05 0 25 mg of Vioxx nightly 0 0
4/05 CT - Clear 25 mg of Vioxx nightly 0 0
5/05 0 25 mg of Vioxx nightly 0 0
6/05 0 25 mg of Vioxx nightly 0 0
7/05 0 25 mg of Vioxx nightly 0 0
8/05 0 25 mg of Vioxx nightly 0 0
9/05 CT - Clear 25 mg of Vioxx nightly 0 0
10/05 0 25 mg of Vioxx nightly 0 0
11/05 0 25 mg of Vioxx nightly 0 0
12/05 0 25 mg of Vioxx nightly 0 0
1/06 PET/CT - Clear 25 mg of Vioxx nightly 0 0
2/06 0 25 mg of Vioxx nightly 0 0
3/06 0 25 mg of Vioxx nightly 0 0
4/06 0 25 mg of Vioxx nightly 0 0
5/06 CT/PET - unknown lesions on liver 25 mg of Vioxx nightly 0 0
6/06 MRI - unknown lesions on liver 25 mg of Vioxx nightly 0 0
7/06 MRI/cholangiogram 25 mg of Vioxx nightly 0 Biopsy - Clear of tumor -Biliary Hyperplasia
8/06 0 0 0 0
9/06 0 0 0 0
10/31/06 CT/PET 0 0 No evidence of disease
11/06 0 0 0 0
12/06 0 0 0 0
1/07 0 0 0 0
2/8/07 CT/PET 0 0 No evidence of disease
3/07 0 0 0 0
4/07 0 0 0 0
5/07 0 0 0 0
6/1/07 CT/PET 0 0 No evidence of disease
7/07 0 0 0 0
8/07 0 0 0 0
9/07 0 0 0 0
10/07 0 0 0 0
11/07 0 0 0 0
12/07 0 0 0 0
1/08 0 0 0 0
2/08 0 0 0 0
3/08 0 0 0 0
4/08 0 0 0 0
5/08 0 0 0 0
6/08 0 0 0 0
7/08 0 0 0 0
8/08 0 0 0 0
9/08 0 0 0 0
10/08 0 0 0 0
11/08 0 0 0 0
12/08 0 0 0 0
1/09 CT/PET 0 0 No evidence of disease
2/09 0 0 0 0
3/09 0 0 0 0
4/09 0 0 0 0
5/09 0 0 0 0
6/09 0 0 0 0
7/09 CT/PET 0 0 No evidence of disease
8/09 0 0 0 0
9/09 0 0 0 0
10/09 0 0 0 0
11/09 0 0 0 0
12/09 0 0 0 0
1/10 0 0 0 0
2/10 0 0 0 0
3/10 0 0 0 0
4/10 0 0 0 0
5/10 0 0 0 0
6/10 0 0 0 0
7/10 CT/PET 0 0 No evidence of disease
8/10 0 0 0 0
9/10 0 0 0 0
10/10 0 0 0 0
11/10 0 0 0 0
12/10 0 0 0 0
1/11 0 0 0 0
2/11 0 0 0 0
3/11 0 0 0 0
4/11 0 0 0 0
5/11 0 0 0 0
6/11 0 0 0 0
7/11 0 0 0 0
8/11 0 0 0 0
9/11 0 0 0 0
10/11 0 0 0 0
11/11 0 0 0 0
12/11 0 0 0 No evidence of disease
1/12 0 0 0 0
2/12 0 0 0 0
3/12 0 0 0 0
4/12 0 0 0 0
5/12 0 0 0 0
6/12 0 0 0 No evidence of disease
7/12 0 0 0 0
8/12 0 0 0 0
9/12 0 0 0 0
10/12 0 0 0 0
11/12 0 0 0 0
12/12 0 0 0 0





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