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Ramsey

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In Memory

Smsunfl Zach

Patient Information

Age: 22

Sex: Male

Diagnosed: 8/17/04

Died: 10/14/2011

Location: Arkansas

Diagnosis: Large tumor in lower abdomen as well as two small lesions in upper right lung. Final diagnosis DSRCT. Differencials Germ Cell cancer and Ewings Sarcoma.

Hospital

800 Marshall St
Little Rock, AR , 72202
Phone: 501-361-1494
Oncologist Kimo Stine, MD

Status: No evidence of disease August 2006

Relapse: 1/17/07 spots on liver

Caringbridge Journal


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Treatment

Chemotherapy -Given every 3 weeks for 42 weeks. Inpatient for a 3-day admit, and the next treatment requires a 6-day admit.

Doxirubicin
Vinblastin
Gleevac

Surgery -Took 8 hours. Operated on left lung and was unable to remove the tumor with the scope, so made a 6 inch incision and was able then to get it out. Surgeon able to feel around to see what the rest of the lung was like and did not feel any additional tumors. Next he scoped out liver area. There he found the tumor sitting on the bottom of his diaphram. He then made a large cut from the diaphram to the lower pelvis. He was able to remove it (the size of an adult hand) and put a gortex patch on his diaphram. While he had that part of the diaphram open, the surgeon felt on the right side of his lungs and again no tumors.

Lastly the surgeon worked on the main tumor in the lower pelvis. It took a while to get it off of things. The main tumor was stuck to was the colon. The surgeon took that part out and then reattached it. He also discovered several small tumors just floating around and was able to get all of them. The surgery went very well.

All accessible tumors were radiated during surgery that they could not remove. Radiated around the sites to help kill the undetectable or otherwise non-removable cancer cells

Radiation -received 21 days of treatment. Radiated from chest to lower abdomen. Decided to do 10 additional radiation treatments.

Stem Cell Transplant

Time Line

Date Test Treatment Chemicals Result
07/04 CT 0 0 Large tumor in lower abdomen as well as two small lesions in upper right lung.
8/5/04 CT 0 0 Also detected spot on liver.
8/12/04 CT Biopsy and central line placed 0 Hot spots around pelvis too.
8/18/04 0 Chemotherapy 48 hours of Doxirubicin 0
8/23/04 0 Chemotherapy -receives every week between chemo Vinblastin 0
8/25/04 0 Chemotherapy Vinblastin 0
8/27/04 0 Chemotherapy Vinblastin 0
09/8/04 0 Chemotherapy - 6 days of chemo 0 0
10/6/04 CT & bone scan Chemotherapy - 3 days 0 No change in tumors
10/11/04 0 Chemotherapy Gleevac 0
11/2/04 0 Chemotherapy 0 One drug changed due to lack of progress.
12/15/04 CT & bone scan 0 0 One of the spots on lung is gone.
1/12/05 0 Chemotherapy 0 0
2/5/05 CT 0 0 Primary tumor in abdomen has shrunk by 1cm. Comparison from October: 6.86 x 6.57 cm to 5.45 x 5.37 cm.
3/14/05 MRI Chemotherapy 0 Agree surgery is possible.
4/14/05 0 Surgery 0 Removed tumor in left lung, removed tumor on diaphram the size of a human hand, removed main tumor located in the abdomen, needed to cut tumor out of colon and than reattach, discovered small tumors floating around and removed them.
4/21/05 0 0 0 Having trouble with pain management since surgery
4/27/05 0 0 0 Bladder blocked, put in cathetar, IV nutrition started.
4/29/05 0 0 0 Fluid on both lungs.
5/6/05 0 0 0 Releasted from hospital.
6/3/05 0 Day surgery 0 Apharesis catheter placed for stem cell harvest.
6/7/05 0 0 0 Completed cell harvest in one day.
6/16/05 CT Radiation 0 21 days of radiation.
7/9/05 0 0 0 Decided to do 10 additional radiation treatments
8/1/05 0 0 0 End radiation. But began to retain fluid in feet and abdomen.
8/4/05 CT 0 0 No visible sign of tumors. Do not know why retaining fluid.
8/9/05 0 0 0 Admitted to hospital for fluid retention in abdomen and lungs.
8/12/05 MRI 0 0 Fluid retention caused by liver fibrosis developed from radiation. The top part of liver is drawing up and cutting off some of the blood flow going into the heart and is causing blood to back up, creating the fluid leakage into the abdomen.
8/14/05 0 0 0 Bacterial infection.
8/17/05 0 0 0 Respiratory distress, moved to PICU and put on respirator. Inserted tube into abdomen to dry off fluids. Antibiotic to fight infection.
8/21/05 0 0 0 Able to wean off respirator. Problems with sedation.
8/25/05 0 0 0 Continues to improve.
8/26/05 0 0 0 No visible sign of cancer. Released to home.
9/15/05 0 0 0 No further treatment.
9/22/05 0 0 0 Continues to have fluid build up issues.
9/23/05 MRI 0 0 Issues breathing. Fluid retention. No problems seen with liver. Still unsure why fluid building up.
9/27/05 0 Laprascopic surgery 0 No evidence of tumors in abdomen.
9/30/05 0 0 0 Biopsy negative.
10/4/05 0 Drugs to control inflammation and promote healing Steroids 0
10/9/05 0 0 0 TPN at home.
10/31/05 0 0 0 Continues to improve. Off TPN.
11/30/05 CT & bone scan 0 0 No evidence of disease.
12/05 0 0 0 0
1/19/06 0 0 0 Fluid retention in lungs. Back in hospital.
1/21/06 CT 0 0 No evidence of disease. No tumors.
1/22/06 0 0 0 Infection, Alpha Staph. Given antibiotics.
2/1/06 CT 0 0 Improvement with pneumonia
3/20/06 0 Scope on bladder 0 May be nerve damage from surgery. Meds to help.
4/27/06 MRI 0 0 No evidence of disease.
5/06 0 0 0 Continues to improve
6/06 0 0 0 Check up went well.
7/06 0 0 0 0
8/9/06 MRI/CT 0 0 No evidence of disease
9/06 0 0 0 0
10/06 0 0 0 0
11/06 0 0 0 0
12/06 0 0 0 0
1/17/07 CT/MRI 0 0 Spot on liver, grew from 9 mm to 14 mm since last scan
2/07 0 0 0 0
3/12/07 0 Surgery 0 Removed fatty tissue mixed with scar tissue wrapped around an upper ligament that holds up liver. Located on the outside of liver.
4/07 0 0 0 0
5/07 MRI 0 0 Clear. No evidence of disease.
6/07 0 0 0 0
7/07 0 0 0 0
8/07 0 0 0 0
9/07 0 0 0 0
10/07 CT, upper and lower GI series for pain and bleeding issues 0 0 No evidence of disease
11/07 0 0 0 0
12/07 Ct 0 0 Spot seen was probable bacteria, not cancer
1/08 0 0 0 0
2/08 0 0 0 0
3/08 0 0 0 0
4/08 MRI 0 0 Spot on liver remains unchanged since October
5/08 MRI 0 0 Multiple spots in the liver now well defined, but liver specialist does not think it is cancer
6/08 0 0 0 0
7/08 0 0 0 0
8/08 0 0 0 0
9/08 0 0 0 0
10/08 0 0 0 0
11/08 0 0 0 0
12/08 0 0 0 0
1/09 0 0 0 0
2/09 0 0 0 0
3/09 0 0 0 0
4/09 0 0 0 0
5/09 0 0 0 0
6/09 0 0 0 0
7/09 0 0 0 0
8/09 0 0 0 0
9/09 0 0 0 0
10/09 0 0 0 0
11/09 0 0 0 0
12/09 0 0 0 0
1/10 0 0 0 0
2/10 0 0 0 0
3/10 0 0 0 0
4/10 0 0 0 0
5/10 0 0 0 0
6/10 0 0 0 0
7/10 0 0 0 0
8/10 0 0 0 0
9/10 0 0 0 0
10/10 0 0 0 0
11/10 0 0 0 0
12/10 0 0 0 0
1/11 0 0 0 0
2/11 0 0 0 0
3/11 0 0 0 0
4/11 0 0 0 0
5/11 0 0 0 0
6/11 0 0 0 0
7/11 0 0 0 0
8/11 0 0 0 0
9/11 0 0 0 0
10/11 0 0 0 Passed away



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